About Music City Kidney Fundraiser

John and Norah Dunlap on the deck photo

Our story starts with Norah Dunlap.  Norah was born in 2013 with a kidney disease called Alport Syndrome.  AS (Alport Syndrome) has no cure and causes hearing loss, eye abnormalities, and eventually kidney failure over time.  It is a rare disease that is genetically passed down from parents to children.  Norah’s father, John Dunlap, also has AS and has lost nearly 70% of his hearing, has beginning-stage cataracts, and in 2014 had a kidney transplant.  Norah will one day face the same challenges her father has – potentially needing a kidney transplant. Not only does this affect John and Norah, but it will be a part of future generations of the Dunlap family.  

As John began researching more into AS, he found a network and community of other families that suffer from this disease through the Alport Syndrome Foundation.  However, AS is still a relatively unstudied disease.  Many other families with AS have reached out to the Alport Syndrome Foundation to find resources and education about the disease.  The Alport Syndrome Foundation is the leading patient-led, independent, non-profit organization in the United States educating and giving a voice to the AS community.  The Alport Syndrome Foundation made a deep impact on John and Norah’s life and they wanted to give back. 

John rallied together some of his good friends and asked if they would help put together an in-person fundraising event to provide financial support to the Alport Syndrome Foundation so that they can continue to be a voice for families with AS.  Thus, Music City Kidney Fundraiser was born.

We thank you for visiting our page and learning our story.  From the Dunlap family and the board of Music City Kidney Fundraiser, we hope you join us in Nashville TN to have a fun time and raise money for a cause that affects real lives.  Thank you very much. 

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Board of Directors

  • John Dunlap - Board President Photo

    John Dunlap

    President

  • Matt Jones - Vice President Photo

    Matt Jones

    Vice President

  • Trish Dunlap - Secretary Photo

    Trish Dunlap

    Secretary

  • Sheena Jones - Treasurer Photo

    Sheena Jones

    Treasurer

  • Casey Newcomb - Member at Large Photo

    Casey Newcomb

    Member at Large

  • Bill Fowlkes - Member at Large Photo

    Bill Fowlkes

    Member at Large