About Music City Kidney Fundraiser
Our story starts with Norah Dunlap. Norah was born in 2013 with a kidney disease called Alport Syndrome. AS (Alport Syndrome) has no cure and causes hearing loss, eye abnormalities, and eventually kidney failure over time. It is a rare disease that is genetically passed down from parents to children. Norah’s father, John Dunlap, also has AS and has lost nearly 70% of his hearing, has beginning-stage cataracts, and in 2014 had a kidney transplant. Norah will one day face the same challenges her father has – potentially needing a kidney transplant. Not only does this affect John and Norah, but it will be a part of future generations of the Dunlap family.
As John began researching more into AS, he found a network and community of other families that suffer from this disease through the Alport Syndrome Foundation. However, AS is still a relatively unstudied disease. Many other families with AS have reached out to the Alport Syndrome Foundation to find resources and education about the disease. The Alport Syndrome Foundation is the leading patient-led, independent, non-profit organization in the United States educating and giving a voice to the AS community. The Alport Syndrome Foundation made a deep impact on John and Norah’s life and they wanted to give back.
John rallied together some of his good friends and asked if they would help put together an in-person fundraising event to provide financial support to the Alport Syndrome Foundation so that they can continue to be a voice for families with AS. Thus, Music City Kidney Fundraiser was born.
We thank you for visiting our page and learning our story. From the Dunlap family and the board of Music City Kidney Fundraiser, we hope you join us in Nashville TN to have a fun time and raise money for a cause that affects real lives. Thank you very much.
Board of Directors
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John Dunlap
President
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Matt Jones
Vice President
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Trish Dunlap
Secretary
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Sheena Jones
Treasurer
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Casey Newcomb
Member at Large
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Bill Fowlkes
Member at Large